Daily Diary

I’m still here! I haven’t post over the past few days. I would post at the end of my day, but I’ve been too exhausted to do it. It’s been lovely hot weather where I live. So I’ve put my all into going out with my husband the past couple of days. He’s so caring,…

I got some fresh air

Today I had a couple of appointments, the first one went well. It was to book more appointments, so I’m glad that’s done finally! My other appointment went well too, I’ve been booked in for a couple of other things with that also. I am so pleased I’m getting help with my health, really feel…

Day Entry 11 💕

So today I had an appointment. I find going out a big challenge, I get panicky and sometimes tearful if it’s changed last minuet. So when I get an appointment or agree to do something with someone, at the time of arranging it I’m buzzing so excited. Then a bit later in the day, the…

Sunday!

Today has been a day of pain, I think my body doesn’t like getting an added illness and it kind of goes in shut down mode. The pain gets so intense, i feel like I’ve been in an accident and have the flu. Also I fell over yesterday, my knee it’s rather sore today covered…

Day 9 & 10

Yesterday I was too ill to even contemplate writing my diary. I was feeling ill all day. I get pain in my stomach because of the Gastroparesis, every day it’s different some days worse than others. Yesterday was so uncomfortable, I did mindfulness to keep calm about the pain. But I just couldn’t get comfortable…

Day Entry 8

Today has been a usual day with pain and tiredness. We did our food shopping Today, Which is a mission! I used to avoid going out at all because of being embarrassed being seen in a wheelchair. But it doesn’t even cross my mind anymore. It’s so nice to have the freedom of going food…

Today has been productive!

My husband struggles with motivation and sometimes gets so overwhelmed and asks me for advice. It feels good to have strong communication. So yesterday we wrote down everything that was stressing him out it was a list of different things that needed to be done. Once it was all written down He saw how small…

Today’s been a good day!

Today’s been lovely, being a women I like to feel like I look good at times. Not in a vain way but just feeling like I’m looking after myself. My husband is my best friend and he likes to help me feel happy and good. He helped me get up today and dried my hair…

My POTS Day

Day Entry 5 Monday 9th April! So today has been a POTS day… Last night I didn’t sleep so good, I slept 8 hours, I woke up feeling unrefreshed. I forced my self to get up. All day I’ve been feeling tingly all over with a fluttering feeling in my chest. My head feels like…

Day Entry 4

I love Sundays, it’s such a relaxing day. It always feels like the longest day of the week for me. I had a relaxing morning in bed with a coffee. I honestly don’t like coffee, I don’t like the taste, it makes me sick and gives me migraines. But some days I have a hankering…

CBT Treatment

I thought I’d share my experience with CBT. So when I was really struggling with my energy unable to stay awake for more than an hour. I begged my doctor to help. He sent me for CBT (Cognitive Behavioural Therapy). I couldn’t do the full course as my mobility was deteriorating. But what I did…

Day Entry 3

Saturday 7th April… Today I woke up to the sound of the birds. Where I live is next to a nature reserve. Every morning it puts a smile on my face. They’re so loud! Come rain come shine, they’re out there singing. When we moved here it was the first available home we could get…